participation in Alzheimer's disease research and clinical trials and current studies in Seattle through the University of Washington Alzheimer's Disease Research Center (UW ADRC)

Participation in Research and Brain Donation

Our center is looking for a variety of people who are willing to partner with us in Alzheimer's research. The research that happens at the ADRC is entirely dependent upon volunteers who are willing to participate in projects along side us. There are many different levels of participation, from once a year appointment through our research registry to donating spinal fluid through a lumbar puncture, to involvement in current studies and clinical trials of medications and brain donation (see below).

Benefits of volunteering in research:

  • Free yearly follow-up examinations from dementia experts
  • Access to new experimental medication (however, some people may take placebo, an inactive substance, instead of the experimental medications)
  • Treatment recommendations that can be made to your doctor from clinicians at the ADRC
  • Contributing to research efforts that are looking for new treatments and possible preventions for Alzheimer's disease
  • Updates on the latest research efforts on Alzheimer's and other dementias

We are looking to enroll volunteers who have:

  • No memory complaints
  • Some memory concerns or mild cognitive impairment (MCI)
  • A diagnosis of Alzheimer's disease or other diseases that lead to dementia
  • A family history of Alzheimer's or other neurodegenerative disease
  • Veterans with histories of blast or traumatic brain injury from deployment.

In addition to fitting into one of the groups listed above, people who are interested in becoming involved must have a close family member, friend, or neighbor who can answer questions about how the research participant is doing on a day-to-day basis.

 

Research Inquiries

Teah Hoopes, ADRC Research Project Manager - Harborview Medical Center

Phone: 206-744-0588 or 855-744-0588 (toll-free) | Email: uwadrc@uw.edu

Mail:

Teah Hoopes

UW ADRC

Box 359791

Harborview Medical Center 325 9th Avenue Seattle, WA 98104

 

Veterans interested in traumatic brain injury (TBI) research

Research hotline: 206-277-5566 or toll free at 800-329-8387 x65566


Brain Donation

The UW ADRC accepts brain donations from military veterans and currently enrolled ADRC research participants. Brain donation is the most precious and valuable gift that a patient and family can give, with unique benefits. A brain autopsy provides a family with a definitive neuropathological diagnosis of a loved one and an explanation of the symptoms. Importantly, the samples allow researchers to perform analyses that will identify molecular targets for early detection, treatments, and cures.

The UW ADRC Neuropathology Core runs a brain bank with the goal of helping researchers to understand the impact of mild traumatic brain injury (mTBI) on active-duty military members and veterans. Veterans can begin helping now by enrolling today, even though the tissue donation may occur many years from now.

Families and military veterans interested in the Pacific Northwest Brain Donor Network, please contact:

Allison Beller, Research Manager, ADRC Neuropathology Core

Email uwnp@uw.edu


Current ADRC research participants with questions about brain donation, please contact:

Teah Hoopes, ADRC Research Project Manager - Harborview Medical Center

Phone: 206-744-0588 or 855-744-0588 (toll-free) | Email: uwadrc@uw.edu


If you would like to make a financial gift to help the ADRC sustain this unique brain donor network, please visit our donations page and include a note about your specific interest in the ADRC Neuropathology Core.


For members of the public interested in brain donation, please visit the Harvard Brain Tissue Resource.

 

Website: http://www.brainbank.mclean.org/

Phone 800.BRAIN.BANK (800.272.4622) to learn more about becoming a donor. Any person 18 years of age or older can contact the Harvard Brain Tissue Resource Center (HBTRC).